About EDS

Kristin Means discusses her “invisible illness”- Ehlers-Danlos Syndrome. When Rachel first saw it, hemophilia she couldn’t believe how similar Kristin’s story is to her own – even down to how she felt and the problems she faced as a kid!

Here are some links with info about just some of the health issues Rachel has been diagnosed with and is trying to manage and live with. Visit the links to learn more about them:

Ehlers-Danlos Syndrome (EDS)
Tracheobronchomalacia (TBM)
New Daily Persistent Headache (NDPH)
Neurogenic Bladder

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